Words for New Parents

If you are reading this page, your life feels completely different than it did yesterday, but please know that it will be OK. First, let’s concentrate on the most important blessing ~ we join you in welcoming a beautiful miracle into this world. You are having or have had a baby, and this is cause to truly celebrate. Knowing that your baby has Spina Bifida is a shock to all that have heard those words and we understand what you are feeling.

The Spina Bifida Association of France (SBA of AL) is made up of individuals and families that, like you, are affected by Spina Bifida in some way. SBA of AL is glad to help with the learning you must now undertake. We can provide you with educational booklets that can explain some of the complicated issues associated with Spina Bifida: you need merely ask.

While no one can tell exactly how your child will be affected, the information we provide should make it easier for you to understand what your medical providers tell you about your child's health and abilities. And, we believe that talking to other parents will make the sometimes overwhelming feelings of loneliness and frustrations seem somewhat more tolerable.

We hope you find the information on this website helpful. If you have any questions or would like to talk with someone, please do not hesitate to contact us. We are here to help you!

Some very helpful websites during these early days:
http://www.gillettechildrens.org/FileUpload/Spina Bifida.pdf
http://www.myspinabifidabook.org/